e-MOPs

Ethics & Engagement across the Wellcome Trust Major Overseas Programmes

Nuffield Council Case Studies

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Nuffield Council Case Studies

The purpose of this group is to collect your thoughts and comments on three case studies drawn from the experience of delegates at the Children and clinical research international symposium hosted at the Nuffield Council on Bioethics.

This is a private group as these case studies are not yet ready for circulation.

Members: 20
Latest Activity: Dec 5, 2016

Nuffield case studies

Your comments and thoughts needed!

The three case-studies below were drawn from the experience of delegates at the Children and clinical research international symposium, hosted at the Nuffield Council on Bioethics, 28 Bedford Square, London, C1B 3JS, UK. A copy of the report is available on the Nuffield website at http://nuffieldbioethics.org/project/children-research/ (see under developments since launch).

At the international symposium, it was suggested that it would be really helpful to pull together some ‘real’ ethics case studies from different sites across the world, to use as discussion and teaching tools. The three attached cases were developed to highlight particularly challenging ethical situations for researchers. It would be fantastic if summer school participants could submit any thoughts about these case-studies on e-mops at a time that they might still be thinking about the discussions in Kilifi. Ideally by the end of October. Please note that for now these case studies should not be circulated, until we have some case studies that we can consider final.

The case studies are attached:

Case%20studies%20for%20circulation.docx

Please insert your comments in the comment box below.

Discussion Forum

Case study 2: How should researchers seek agreement from young people in secondary schools in Kenya to participate in ‘minimal risk’ research?

Started by Sreymom Pol. Last reply by Alun Davies Nov 9, 2016. 2 Replies

Hello everyone, I don't know if my point of view is understandable, but I would like to share my comment to the case study two.From the case study, KEMRI is well-known to the schools, and they…Continue

Case Study 3: What is a 'fair offer' in research involving children in longitudinal cohort studies on a malaria immunity?

Started by Chiedza Munikwa Nov 1, 2016. 0 Replies

One would like to think that the study would also like to reduce the transmission of malaria? If someone in the home has malaria then surely that calls upon the study staff to assist as far as they…Continue

Case Study 1: ethical-legal complexities in a sexual and reproductive health study in Cape Town, South Africa

Started by Chiedza Munikwa Nov 1, 2016. 0 Replies

Well, to operate within the bounds of the law the case should be reported to the South African Police Service, possibly with the assistance of a Social Worker as the young mother and grandmother will…Continue

Case 1

Started by Suphak Nosten. Last reply by Katharine Wright Oct 31, 2016. 1 Reply

Dear All,Please find my discussion points on the attached file.Kind regards,Suphak.…Continue

Comment Wall

Comment by Katharine Wright on October 28, 2016 at 12:17

Dear Sreymom

This is really helpful - thank you! I really like the idea of engaging with students so that they take on some of the role of prompting parents to respond.

And thank you so much for the being the first to get the discussion going!

Very best wishes

Katharine Wright (Nuffield Council)

Comment by Phaik Yeong Cheah on November 12, 2016 at 7:12

Hi all, these are very interesting cases. my comments below.

Case 1 - Question 1. To which authority....should this consensual sexual relationship be reported. i think we should change it to "should this consensual sexual relationship be reported to the authorities? if yes, to whom?" something like that...

i would also rephrase the last question. Maybe something like "Should the REC have a role ...if so what?"

Case 2. i would add another question. Should studies of this nature have a different approval process? i.e. is this "medical research" (term used in DOH) or "health research" (new CIOMS term). 

Case 2 is close to my heart as i am currently struggling with this myself. we are evaluating our own public engagement activitiy. 

hope the above helps. 

Phaik yeong

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