e-MOPs

Ethics & Engagement across the Wellcome Trust Major Overseas Programmes

Featured Project - Identifying the Success Indicators of the Tak Province Border Community Ethics Advisory Board

Dr. Khin Maung Lwin is a 2012 Global Health Bioethics Network Fellow.

Biosketch:

I am from Myanmar and born at 1967. I finished my degree (M.B., B.S) from Institute of Medicine 1 Yangon, I worked with humanitarian NGOs for about 5 years in Myanmar. Since 2005, I joined to Shoklo Malaria Research Unit (SMRU), involved many clinical trials as co- investigators and 3 trials as principal investigator. Since 2007, I led SMRU ethic working group mainly for Informed Consent Procedures. From 2008 I was assigned as manager for Cross Border Malaria Control Project.

In January 2009, together with Phaik Yeong Cheah, I formalized and established the Tak Province Border Community Ethics Advisory Board (T-CAB) and am still facilitating it.

Project Title: Identifying the Success Indicators of the Tak Province Border Community Ethics Advisory Board

The Shoklo Malaria Research Unit (SMRU) has been working on the Thai-Burmese border for many years in  health and community based research among the diverse border population. In research settings,  different forms of engagement strategies have been initiated, but there has been little research on their effectiveness. There is a lack of documentation on the challenges associated with these different strategies and little or no evidence base on which to base engagement strategies. SMRU facilitated to form the Tak Province Border Community Ethics Advisory Board (T-CAB) on January 2009. The T-CAB may have been the first of its kind as there has not been any set up of similar nature involving mobile and unstable populations residing along a porous border.

This project, which is the first of the series of studies, is to answer  the following question: “What are the key success indicators of the T-CAB?" The success will be measured against expectations of key stakeholders. We will explore the expectations of key stakeholders includíng investigators, clinic staff, local communities by using appropriate qualitative research methods eg FGD,IDI, observation. Based on these findings, a bespoke evaluation tool will be developed and piloted.

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