Ethics & Engagement across the Wellcome Trust Major Overseas Programmes
Wezzie Nyapigoti is a 2018 GHBN Bursary Fellow
Wezzie Nyapigoti has been working as a fieldworker at the Malawi Liverpool Wellcome Trust (MLW), since November 2012 up to date. In 2012-2013, he worked in a study which determines the prevalence of lung disease among adults in Malawi. In 2014 to 2017, he then worked with the Cooking and Pneumonia study (CAPs), which was assessing the effectiveness of an advanced cooking stove in preventing pneumonia in rural Malawi. Through this experience, he became interested in compensation and benefits for study participation. His bursary project builds on this interest.
Project Title: To explore views of research stakeholders about appropriate compensation and benefits for study participation in Malawi
The aim of this study is to explore views of research stakeholders about appropriate compensation and benefits for study participation in Malawi and to identify strategies that promote fair compensation and benefit sharing with research stakeholders. The study will follow a qualitative design and data will be collected using semi-structured interviews and focus group discussions. Study participants will include researchers, ethics board members, Community Advisory Group members, community leaders, research participants, people who have been invited to take part in research but declined, and fieldworkers/nurses.
The project will be implemented in locations that have been key research sites for MLW for several years and where people have experienced studies providing different levels of compensation and benefits, including rural areas and high and low-income urban settings. A workshop will be used to develop recommendations based on the study findings. This study will support development of MLW guidelines on appropriate compensation and benefits for study participation, and findings will also be shared with national research ethics committees to support their policies on participant compensation.
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