e-MOPs

Ethics & Engagement across the Wellcome Trust Major Overseas Programmes

Featured Project: Incorporating the views of community members into guidelines on benefits to participants at the KEMRI Wellcome Trust Unit in Kilifi, Kenya

Ms Maureen Njue is a 2012 Global Health Bioethics Network Fellow

Biosketch:

I hold a BA degree in Sociology from Maseno University, Kenya. I joined KEMRI/Wellcome Trust, Kilifi in 2007 working within the Social and Behavioural Research group. I was awarded a Masters scholarship from KEMRI/WT Strategic Award and pursued an MPH at the London School of Hygiene and Tropical Medicine in London, UK. My research interests have revolved around research ethics with some of my work focusing on exploring the direct/indirect costs and benefits of research participation in a drug trial, exploring participants understanding of the research process and exploring perceptions around informed consent process for an emergency clinical trial. 

Project Title: Incorporating the views of community members into guidelines on benefits to participants at the KEMRI Wellcome Trust Unit in Kilifi, Kenya

This project aims to first explore the perceptions of community members in Kilifi regarding what’s perceived as good practice for planning benefits to participants across the different types of research; and how these views can be incorporated into guidelines for researchers on planning for benefits in studies.  Secondly, it aims to explore methods for community consultation focusing on questions about benefits.

Approximately 70-80 local residents will be purposively selected, including KEMRI community representatives, community leaders and other opinion leaders with the aim to maximize diversity of views. Small group discussions will be facilitated using case studies of particular types of research in which the views around the types and value of benefits that would be seen as appropriate and the reasons for these views will be explored.

The study aims to describe the views and reasoning in the community deliberations. The investigators will consider the main proposals from the community discussions; assess consistency and coherence within these views, including how they relate with the wider literature/existing guidelines on benefits. The study will present recommendations on research benefits to participants based on the perspectives and priorities of local residents in Kilifi.

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