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Ethics & Engagement across the Wellcome Trust Major Overseas Programmes

Informed consent for improved research understanding

Nipaphan Kanthawang is a 2021 GHBN Bursary Fellow

Biosketch:

Nipaphan is a research nurse from Chiangrai, northern Thailand. She completed a Bachelor's of Nursing Science from Siam University in 2016 . She worked as an IPD and Pediatric nurse from 2007 until 2016. She is currently a research nurse within the Department of Bioethics and Engagement of Mahidol Oxford Tropical Medicine Research Unit (MORU). She has been working with Associate Professor Phaik Yeong Cheah and Carlo Perrone, MD at Chiangrai Clinical Research Unit (CCRU), MORU since 2016. Previous research included ‘The impact of C reactive protein testing on antibiotic prescription in febrile patients attending primary care in low-resource settings’ and REACH-2 Chiangrai (Resilience, Empowerment and Advocacy in Women's and Children's Health Research), a qualitative research study as well as Scrub Typhus Public Engagement Work with local communities. She is currently completing a Master’s degree in Public Health at Mae Fah Luang University, Chiangrai, and was awarded a GHBN bursary for the ‘Informed consent for improved research understanding’ project.

ICon-IRU (informed consent for improved research understanding)

One of the studies our unit (CCRU) was involved in was REACH (Resilience, Empowerment & Advocacy in Women’s and Children’s Health Research), which explored vulnerabilities related to health research. At CCRU study participants often expressed or showed difficulties understanding the projects they were involved in.

ICon-IRU aims at finding ways to improve research understanding by providing clearer informative materials. To do this we will work together with community members, especially hill tribes, the elderly and/or illiterate populations. Through a series of workshops we will assess the understanding of informed consent forms and patient information sheets of ongoing or planned clinical studies, identify critical aspects and explore the use of various media (video, audio, graphic) with the aid of local interpreters and graphic designers to produce improved materials, to be used as templates in future research projects.

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