Ethics & Engagement across the Wellcome Trust Major Overseas Programmes
Finally, after more than 2 years of work on an article on Mass Drug Administration in Malaria Elimination - with emphasis on Community Engagement - it is getting ready to get published. Several interviews with international senior malaria researchers and policy makers from SEA, USA and Australia have been extracted, analyzed and the info put into a nice and understandable form....
Interesting feed back from people who do know-, should know and who make the rules...
Every year Malawi Liverpool Wellcome Trust (MLW) recruits new staff to join the various projects within the programme, a good percentage of these staff is dominated by Fieldworkers (FWs). In 2015 MLW had about 87 FWs, over the years we have seen the number increasing up to 130. Principal Investigators (PI) manage their respective FWs. The increasing number drew our attention to embark on a small bursary project which aimed at exploring experiences of the FWs and how we can improve ethical…Continue
Quick update from my side on the project titled 'Ethical concerns over the analysis and storage of excised human tissue' – following the feedback I received from our local ethics committee, I have designed the questionnaire and resubmitted the application, so just waiting to hear back. In the interim I have also submitted the abstract to an international biobanking conference, under the ELSI platform. This has been accepted for a poster presentation. I am really hoping I…Continue
Informed consent has been described as one of the foundational pillars of ethical research, and arguably one of the most researched area in ethics. Understandably, we had many questions during planning of this project, key of which was what new contribution will our project add to the vast ‘consent literature’? Surprisingly, we also knew, from our own experiences of being in translation of consent information, that there is very little guidance available, particularly when such translation…Continue
I am delighted to present to you the preliminary results for my bursary project and some of my experiences so far.
I think all of you know my project by now. However I will skim through the background and methods for those that are hearing it for the first time.
Background – Biometrics is the science of establishing the identity of an individual based on their physical attributes. Ethical concerns around their appropriate usage have been…Continue
Several clinical research projects have been implemented within the Malawi Liverpool Wellcome Trust which required access to identifiable participants’ information from current or previous studies. For example, some studies want to recruit participants who have been involved in previous studies and so need their contact information, or studies want to examine further issues among a group of previous participants and need information about, for example, their health or socioeconomic…Continue
Most countries in Africa lack effective civil registration systems. This means that many people in these countries live and die without important data about their lives being collected. In the absence of these data, the planning and implementation of various health and social programmes can be difficult.
A Health and Demographic Surveillance System longitudinally monitors births, deaths, pregnancy outcomes, migrations and other vital events in a geographically defined population. There…
I hope this post finds you in good health. Please find my end of project report for your perusal.
1. Summary of your project, results, and outputs
The project had three main objectives, namely: (i) to conduct a desk review of related literature with a view to develop a conceptual framework for the project; (ii) to conduct interviews with experts in…
Good morning everyone from Siem Reap,
I really hope that you are doing well. I am now updating the CARE project. I would like to say thank you to everyone for you comment and support.
Summary of the project
The aim of the project was to…Continue
Added by Sreymom Pol on May 30, 2017 at 5:52 — No Comments
I am delighted to let you know that I successfully completed the data collection a few months ago. At the moment I am in the process of drafting my manuscript for publication. There are a lot of interesting insights coming out from the data and I can’t wait to share with you at the upcoming summer school in September.
In a snap shot; BioUSER study has revealed that implementation of biometrics within a health care system in Malawi and possibly other developing…Continue
Mary Chambers at OUCRU is starting to work in some rural communities where there is vaccine hesitancy. She is looking for literature on CE around this issue, and also whether anyone has examples of consent forms for vaccine trials in children?
Her questions are:
1. Do you know anyone who is working on this subject that she can get in touch with?
2. Can anyone please send her advice, literature tips, or any other suggestions on this…Continue
Added by Dina Rippon on April 27, 2017 at 20:46 — No Comments
We work across 2 hospitals in Kwa-Zulu Natal to better understand the HIV and TB co epidemic at the site of infection. In interactions with surgeons several questions were raised about the research and surgical consent process has on each other and a patient’s willingness to consent to these processes. This project is therefore focused around a surgical health care worker’s perspective of the consent process. We have applied to our local ethics committee for approval to start this study at…Continue
I’ve now been in post at MLW for over 15 months, so Dina’s encouragement to write a blog was a good prompt to reflect on what we’ve done in that time. I have three main areas of work with GHBN links: evaluating science communication activities, supporting GHBN bursary projects, and wider ethics research. I’ll say a little about each in turn.
Part of my role involves supporting monitoring and evaluation of MLW’s science communication. Regina and others in the Science Communication team…Continue
My study’s focus is on ethical challenges faced by fieldworkers, it is one of its kind here in Malawi because so far there’s no study that has targeted fieldworkers. The study has delayed for a while due to other reasons beyond my control but at present am happy to share that it’s progressing. Fieldworkers, Study Coordinators and Principal Investigators are involved, the main objectives are to understand ethical issues surrounding Fieldworkers in their day to day work, their…Continue
I hope that you are all well. Just wanted to share with you about some progress on my project on ASSENTING. I submitted my protocol to LSTM and has come with some feedback and am working on that. One of them is: suggesting the use of visual cues for children's interviews/FGDs. Just wanted to hear your views on how this can apply in the interviews and FGDs as suggested. Especially from those of you who have done similar work before. Your views will be greatly appreciated.
If you happen to be in Thailand Oct-Dec 2016, catch the Puppet Theatre on Antimicrobial Resistance and Research with Children. This a collaboration between the Mahidol Oxford Tropical Medicine Research Unit (MORU) and B-Floor. Theatre Production.
We are delighted to have been awarded the GHBN bursary to look at the best practice in Strengthening the Processes for Informed Consent Translation to Enhance Communication. We are proposing to describe the processes and experiences of translating Informed Consent Forms (ICFs) across different research studies and teams at KEMRI-Wellcome Trust Research Programme, develop a glossary of translated terms for difficult words, phrases and scientific terminologies used in…Continue
Trust you are keeping well. This is just to update you on my progress with my project. It seems I am still struggling to finish the manuscript. I took a small break from it and see whether going back to the data will bring any fresh perspectives worth sharing with the 'world'. I feel the break worked and am on it now hoping in a week or two will have something to share again with my co-authors.
I do hope you are doing fine. I would like to share with you the progress of our activity.
In mid of June, we organised a haft day Ethics workshop for ethical committee (EC) members from hospitals and institutions in Hochiminh City. The most successful section was a one-hour discussion on "challenges that members are facing during their work".
Participants focused their dilemma between multiple roles: being research’s management, hospital’s management and…Continue
Please see link to our very cool engagement project in rural Cambodia. we are using science theatre to engage local people. http://www.tropmedres.ac/using-drama-to-fight-malaria-in-rural-cambodia
Please also visit our facebook page. https://www.facebook.com/dramaagainstmalaria