Ethics & Engagement across the Wellcome Trust Major Overseas Programmes
I am writing a paper on the development of drugs for severe malaria in children.
Although important progress has been made during the last decade, severe falciparum malaria remains a major cause of mortality, especially in children under five in sub-Saharan Africa. Even with the current first line treatment, parenteral artesunate, mortality remains high at around 10%. It is clear that new drugs are needed. Artesunate was first evaluated in healthy volunteers for…Continue
Recently MLW science communication team engaged staff members at Chikwawa site to orient them on how the department operates and some activities coming next year. Rodrick took advantage of the meeting to introduce a bursary project whose focus is on fieldworkers including those working at the site, it was so interesting learning that all of them have positive expectations for the project. One of them pointed out that they are looking forward to the outcome of the study which will be…Continue
I am delighted to give you a brief update about my bursary project. At the moment, I am in the process of data collection. Twenty two semi-structured interviews out of the planned forty three have already been conducted. The data that is coming out is so interesting. One thing that is coming out clear from my data is that most Malawians using our primary health care system are so ignorant about issues on bioethics.
I am anticipating being through with data collection…Continue
Just wanted share a quick update on the progress of fieldworkers'; so far after an initial submission there was one comment to be addressed. We have now resubmitted hoping the protocol will finally approved and then move to another stage.
Hi every one, I hope you are all well! I am thinking of what are the best ways (methods) to present the research results to our research participants. Does any one has experience or know any resource that I can look into?Continue
I do hope you are all doing well, I would like to share with you some of my happiness and results after the trip to the Ethox in last Jan-Feb this year. …Continue
Hi all, exciting news for us here in Cambodia our study on health ethics, perceptions and beliefs in the neonates has now finished. We have analysed the results and written a manuscript which we will be submitting for publication, so fingers crossed! Sreymom and I had a great time conducting this study. Some of the results have surprised us. For example the move away from traditional medicine to modern medicine and in particular the tolerance by the older generation for this to happen.…Continue
I hope this update finds you in good spirit.
We began participant enrollment in May this year and have already completed a few follow ups! Recruitment is ongoing.
Some more good news is that I’d submitted an abstract about the project to the Oxford Global Health and Bioethics International Conference and got accepted for poster presentation! I’m grateful to the 2015 Summer school participants for the useful comments received about my poster presentation. The…Continue
My thoughts about fieldworkers at Malawi Liverpool Wellcome Trust (MLW) grew into a passion in 2013 when Dorcas visited the institution; because of her visit Science Communication department organized a meeting for her to interact with this group of staff who since then were working in their different projects without knowing each other’s role. Personally I didn’t attend the meeting because of other commitments at a field site but upon my return each fieldworker who attended the meeting…Continue
I have been asked to submit a paper to the Asian Bioethics Review special issue on vulnerability. in this paper, I argue that the blanket categorization of children as vulnerable research subjects is ethically problematic. I don't want to reveal too much as the paper is under review now! But happy to hear if you have any thoughts.
There is an old saying that goes “behind every successful man is a woman”. But if I were able to turn this around, I would say, "behind every successful person is a loving woman, and a passion for what the person does". No other time has this been so true, than the period I have been involved in the field workers project. This has been the most exciting and informative period of my career…but how exactly did it all start?
As a former fieldworker myself, I have experienced firsthand,…Continue
I am glad to share with you my first blog post with an update on my project entitled “Ethical issues in the use of molecular epidemiological techniques, a literature review and expert opinion analysis”.
This study explores the ethical issues associated with linking pathogen data to HIV infections, in particular, the use of phylogenetic analysis results to…Continue
This is a blog post by Maureen Njue. This blog post (as well as the comment by Liam Boggs that follows it) originally appeared on the RESYST website here:…
I do hope you are doing well. Just a few update on my project: Informed consent form in Vietnam. After summarising all text data from audio interviews, I found many "interesting" themes and emerged data/information that I had not expected means new things come up. I was fighting with: which one were important should focus on? Frankly speaking I wanted to include/cover everything that the project found..with the help of the experts at the Ethox, I m now writing up a paper,…Continue
I must say I am enjoying data collection. So far so good. However the question I always ask myself is "Is it a good practice to refer to the study guide when conducting interviews with study participants?"
Hi Everyone. The study on health ethics practices and beliefs in the neonatal period in Cambodia has now gone into its second phase! We have conducted five interview and one focus group discussion with people living in remote villages. The response that we are getting from villagers is incredible, so many want to be involved and are very happy to share their thoughts on what can be a sensitive topic. For those of you coming to the Oxford Tropical Network Meeting in a week’s time I…Continue
I know its a bit late but I wanted to share this project with you. We have been working on this science gaming project for a long time now and have finally run the 48 hour intensive "hack" where the lion's share of building is done. There is a lot I could say here but we are so tired after such a long build up and gruelling event I encourage you to visit our site to see what we have been doing. We will have an update on all videos soon with english subtitles which I can…Continue
Happy New Year! Hope you have all been well.
From the Benefits and Payments study, we have been working on two manuscripts and I’m happy to report that we finally got one of the papers published in PLOS ONE in December, 2014. I’m currently working on finalizing the second manuscript and I hope and pray that it will soon be published.
Below is a link, if you'd like to read the paper…Continue
I am delighted to inform you that on January 6th 2015, i was chosen to receive the 2015 Pillars of PRIM&R Award. PRIM&R stands for Public Responsibility In Medical AND Research and its role is to advance the highest ethical standards in the conduct of biomedical, behavioral, and social science research through education, membership services, professional certification, public policy initiatives, and community building. The purpose of the 2015…Continue