Ethics & Engagement across the Wellcome Trust Major Overseas Programmes
Hi all, exciting news for us here in Cambodia our study on health ethics, perceptions and beliefs in the neonates has now finished. We have analysed the results and written a manuscript which we will be submitting for publication, so fingers crossed! Sreymom and I had a great time conducting this study. Some of the results have surprised us. For example the move away from traditional medicine to modern medicine and in particular the tolerance by the older generation for this to happen.…Continue
I hope this update finds you in good spirit.
We began participant enrollment in May this year and have already completed a few follow ups! Recruitment is ongoing.
Some more good news is that I’d submitted an abstract about the project to the Oxford Global Health and Bioethics International Conference and got accepted for poster presentation! I’m grateful to the 2015 Summer school participants for the useful comments received about my poster presentation. The…Continue
My thoughts about fieldworkers at Malawi Liverpool Wellcome Trust (MLW) grew into a passion in 2013 when Dorcas visited the institution; because of her visit Science Communication department organized a meeting for her to interact with this group of staff who since then were working in their different projects without knowing each other’s role. Personally I didn’t attend the meeting because of other commitments at a field site but upon my return each fieldworker who attended the meeting…Continue
I have been asked to submit a paper to the Asian Bioethics Review special issue on vulnerability. in this paper, I argue that the blanket categorization of children as vulnerable research subjects is ethically problematic. I don't want to reveal too much as the paper is under review now! But happy to hear if you have any thoughts.
There is an old saying that goes “behind every successful man is a woman”. But if I were able to turn this around, I would say, "behind every successful person is a loving woman, and a passion for what the person does". No other time has this been so true, than the period I have been involved in the field workers project. This has been the most exciting and informative period of my career…but how exactly did it all start?
As a former fieldworker myself, I have experienced firsthand,…Continue
I am glad to share with you my first blog post with an update on my project entitled “Ethical issues in the use of molecular epidemiological techniques, a literature review and expert opinion analysis”.
This study explores the ethical issues associated with linking pathogen data to HIV infections, in particular, the use of phylogenetic analysis results to…Continue
This is a blog post by Maureen Njue. This blog post (as well as the comment by Liam Boggs that follows it) originally appeared on the RESYST website here:…
I do hope you are doing well. Just a few update on my project: Informed consent form in Vietnam. After summarising all text data from audio interviews, I found many "interesting" themes and emerged data/information that I had not expected means new things come up. I was fighting with: which one were important should focus on? Frankly speaking I wanted to include/cover everything that the project found..with the help of the experts at the Ethox, I m now writing up a paper,…Continue
I must say I am enjoying data collection. So far so good. However the question I always ask myself is "Is it a good practice to refer to the study guide when conducting interviews with study participants?"
Hi Everyone. The study on health ethics practices and beliefs in the neonatal period in Cambodia has now gone into its second phase! We have conducted five interview and one focus group discussion with people living in remote villages. The response that we are getting from villagers is incredible, so many want to be involved and are very happy to share their thoughts on what can be a sensitive topic. For those of you coming to the Oxford Tropical Network Meeting in a week’s time I…Continue
I know its a bit late but I wanted to share this project with you. We have been working on this science gaming project for a long time now and have finally run the 48 hour intensive "hack" where the lion's share of building is done. There is a lot I could say here but we are so tired after such a long build up and gruelling event I encourage you to visit our site to see what we have been doing. We will have an update on all videos soon with english subtitles which I can…Continue
Happy New Year! Hope you have all been well.
From the Benefits and Payments study, we have been working on two manuscripts and I’m happy to report that we finally got one of the papers published in PLOS ONE in December, 2014. I’m currently working on finalizing the second manuscript and I hope and pray that it will soon be published.
Below is a link, if you'd like to read the paper…Continue
I am delighted to inform you that on January 6th 2015, i was chosen to receive the 2015 Pillars of PRIM&R Award. PRIM&R stands for Public Responsibility In Medical AND Research and its role is to advance the highest ethical standards in the conduct of biomedical, behavioral, and social science research through education, membership services, professional certification, public policy initiatives, and community building. The purpose of the 2015…Continue
Just to give you a quick update of my bursary project,
The project aimed at finding ways in which fieldworkers can be effectively supported to handle practical and ethical challenges they encounter in their roles. This was to be achieved by
1. Carrying out a telesurvey to collect information on current support supervision, training, practical and ethical challenges and dilemmas FWs face; and performance management strategies and activities from a range of…Continue
In November 2014, I presented a poster on valid consent for adolescents at the 63rd annual meeting of the American Society of Tropical Hygiene and Medicine meeting in New Orleans. The ASTMH annual conference is the biggest…Continue
Hi everyone, please see my blog on the Ethox website about an assent symposium at the World Congress of Bioethics in Mexico -http://www.ethox.ox.ac.uk/ethox-blog
The prọject to explore options of clinical research stakeholders (patient, researchér, doctor and ethical committee members) in order to create guidance and informed consent sheet template valid in Vietnamese.
interviews, I found the term "Nonclinical trials" is not easy to explain to the patient while it is not a problem to the researcher. Interviews from the researchers are more informative than the one from the patient. Transcription and translation are more time consuming than I…
I am delighted to inform you all that my research proposal titled “Bioethics of biometrics within the health care system and medical research in Malawi” has just been approved by the College of Medicine Research and Ethics Committee (COMREC). In this regard, I am planning to pilot my data collection tools in the next few days.
Sorry it has taken a bit of a prod to post a blog. I am very happy to let everyone know that the health ethics, perceptions, beliefs and practices around the time of delivery study has started here in Cambodia The was a last minute change of plan as there was a long delay in getting national ethical approval and the team were so keen to start. So we decided to included mothers and relatives of children admitted to the hospital in addition to those planned in a community…Continue