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Ethics & Engagement across the Wellcome Trust Major Overseas Programmes

Hi everyone! Who is going to the EACME in Leuven? I am hoping to go and have submitted an abstract what is a fair offer when it comes to research with children in low-income settings. The UK Nuffield Council on Bioethics report on Children and Clinical Research stressed the importance of the requirement of fair offer when inviting children to participate in research. What does everyone think?

Views: 65

Comment by Nguyen Thi Thanh Thuy on March 14, 2016 at 2:01

Hi PY, it is nice to hear from you. Children are always vulnerable especially when they are invited participating in research. One of the main reasons for this concerns I think because of they do not competent enough for decision making, all of which depend on parents/guardians' wisdom. I think your abstract will be a very interesting topic. 

Best,

Thuy

Comment by Neema Mtunthama on March 15, 2016 at 10:54

Hi Phaik Yeong,

Congrats on sending an abstract and I hope you do go! Will look forward to your meeting feedback.

It was nice to meet again at the Nuffield Council on Bioethics Symposium on Children and Clinical Research. I find their report enlightening. For others interested to read it, please check http://nuffieldbioethics.org/project/children-research/

Best regards

Neema

Comment by Phaik Yeong Cheah on March 15, 2016 at 20:02

Thanks Neema and Thuy, in your context what does fair offer mean?

Comment by Nguyen Thi Thanh Thuy on March 25, 2016 at 2:48

Hi PY, I don't know where to start with the fair offer but I do think that it would be offering more opportunities for children exposing to clinical research with appropriate (understandable) information, offering them more choices in making a decision whether participate in research or withdraw from the research at any time. I also wonder whether children (especially teenagers) have equivalent power as the parents say yes, children say no and vice versa then what should the researcher do to maintain children's right. What do you think?

Best,

Thuy

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