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Ethics & Engagement across the Wellcome Trust Major Overseas Programmes
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- Can you tell us a little about what you do?
- I work as a qualitative Research Assistant in HIV and TB research and clinical trials. i am also interested in research ethics, and have been running a study on the sharing of participant identifiable information between research studies.
- Which MOP/institution are you affiliated with?
- Malawi Liverpool Wellcome Trust Clinical Research Programme
- Why do you wish to join the e-MOPs community?
- I got funding from Global Health Bioethics Networks to do a study on the sharing of participant identifiable information between research studies, exploring what research stakeholders think about this practice. Joining the e-MOPS i believe provides me with the opportunity to learn more about research ethics, and also to share my research work with others whose feedback will help to increase my understanding of ethical issues in research.
Mackwellings Phiri's Blog
Exploring perspectives of research stakeholders on sharing of identifiable participant information between research studies
Posted on December 18, 2017 at 14:30 3 Comments 1 Like
Several clinical research projects have been implemented within the Malawi Liverpool Wellcome Trust which required access to identifiable participants’ information from current or previous studies. For example, some studies want to recruit participants who have been involved in previous studies and so need their contact information, or studies want to examine further issues among a group of previous participants and need information about, for example, their health or socioeconomic…
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Comment Wall (2 comments)
Great! Looking forward to the findings. All the best.
We will be happy to read the findings, Any opportunity for collaboration from Ghana
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