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Ethics & Engagement across the Wellcome Trust Major Overseas Programmes

What we've been up to in the benefits study!!!!

Hi all,

Hope you have been well. Below is a short summary of what we've been up to in Kilifi regarding the Benefits study.

The project aims to explore the community views on the way benefits to participants should be planned and implemented in research.

From the outset we aimed to hold workshops and small group discussions with various purposively selected community groups. So far, we have engaged 2 groups and have held 2 workshops each lasting half a day and 4 small group discussions each lasting approximately 4 hours.  These two groups were drawn from KEMRI/WT staff, first, the community Liaison Group (CLG) (n=12) who undertake community engagement activities in the programme. Second, the programme fieldworkers (n=10) who are the interface staff between the research institution and the community, including undertaking informed consent and providing benefits in practice. 

The Workshop with CLG was held on the 25th of September, 2012 and due to unavoidable logistical reasons we held the subsequent small group discussions much later on the 12th of November, 2012. For the field worker group, the workshop was held on the 16th of October and quickly followed by the small group discussions the following week on the 22nd and 23rd of October, 2012. The workshop and group discussion sessions were digitally recorded are being transcribed in preparation for analysis.

This has been an iterative process and from the experience from the informative workshops and group discussions we continue to refine our study tools and guides to ensure that we capture information that will be helpful in answering our research questions.

We have been on track with our planned activities, and aim to continue with the remaining community members’ workshops and group discussions in the New Year. However, we have had to re-schedule some of our timelines for next year to avoid having activities during the Country’s general election week.

We look forward to next year’s activities as we continue to learn from our community members.

Wishing you all a Merry Christmas and a great and fruitful New Year!!

 

Views: 43

Comment by Dina Rippon on December 18, 2012 at 16:14
So interesting to read your update - goodness you've accomplished a lot! Thanks for sharing this with us. Did anything unexpected come out of the workshops you've already held? Have you had to significantly refine your study tools and guides, or is it just little things you've had to change? I wish you all the best with next year's activities!
Comment by Michael Parker on February 3, 2013 at 17:58

This is a great project Maureen and it sounds like it is going really, really well! Could you say something about the kinds of views that people in Kilifi have about benefits? What is the range of views? I remember once meeting a very interesting woman in Kilifi who thought that it was a human right for research participants to be paid a wage for their participation in research - has anyone in your groups said anything like that?

Comment by Maureen Njue on May 30, 2013 at 18:15

Hi Michael, apologies for my 100 years late reply. We have now finished our data collection and are going through our data at the moment, however, I cannot say that we have heard any 'extreme' views. Generally, I can say benefits are viewed as important more as way of ensuring that people are not over burdened (expenses and time) while taking part in research, as well as, a show of appreciation and motivation for the participant (and not as payment for a service rendered).

We are working on analyzing the data and we hope to have more exciting and detailed findings, to hopefully present at this year's summer school.

Comment by Michael Parker on May 31, 2013 at 7:50

Thanks for the update. I'm really looking forward to hearing more at the summer school!

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